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Liebe Eltern,

anbei ein Text, der vielleicht ein bißchen Mut macht, das andere Wunschkind annehmen zu können. Ich selbst wurde 1973 als Frühchen geboren und erkrankte durch eine Hirnblutung an einem Hydrocephalus. Trotz des nicht immer einfachen Weges, würde ich mein Leben nie in Frage stellen wollen. Ich habe meine Geschichte jetzt aufgeschrieben und hoffe, dass ich auch Eltern damit ein wenig Mut machen kann, diesen nicht immer einfachen Weg, gemeinsam mit ihrem Kind zu gehen. Das Buch erscheint im Herbst 2010 und wird auf folgender Seite www.leben-mit-hydrocephalus.de/ vorgestellt.

Out of Dessert (Von Emily Perl Kingsley)

I am often asked to describe the experience of raising a child with disability, to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It`s like this…

When you`re going to have a baby, it`s like planning a fabulous vacation to Italy. You buy a bunch of guide books and you make wonderful plans. The Coliseum….Michelangelo`s David….the gondolas in Venice. You may learn some handy phrases in Italian. It`s all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says “Welcome to Holland”.

“Holland!” you say. “What do you mean Holland? I signed up for Italy! I`m supposed to by in Italy. All my life I`ve dreamed of going to Italy.”

But there`s been a change in the flight plan. They`ve landed in Holland and there you must stay.

The important thing is that they haven`t taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It`s just a different place. So you must go out and buy some new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It is just a different place. It`s slower paced than Italy, less flashy than Italy. But after you`re been there a while and you catch your breath, you look around…and you begin to notice that Holland has windmills….and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy…and they`re all bragging about what a wonderful time they had there. And for the rest of your life you will say, “Yes, that`s where I was supposed to go. That`s what I had planned.”

And the pain of that will never, ever, ever go away – because the loss of the dream is a very significant loss.

But….If you spend your life mourning the fact they you didn`t get to Italy, you may never be free to enjoy the very special, the very lovely things….about Holland.

 Viele Grüße

Caroline